Argentinian couple moves to US to allow their toddler to join gene therapy trial

Natalia and Juan Lovato, originally from Argentina, moved to the U.S. after their son Ciro was diagnosed with Canavan disease, a rare genetic disorder that causes progressive brain atrophy. They relocated to participate in a gene therapy trial in Ohio, hoping to improve Ciro's condition. The trial involves a one-time gene therapy using a modified virus to deliver DNA into brain cells, which has shown promising results in stabilizing the condition of children with Canavan disease. Despite the challenges and high costs associated with the treatment, the Lovatos are committed to seeking further therapies to improve Ciro's quality of life.